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The Tourette Syndrome Association (TSA), based in Bayside, New York, United States, is a non-profit voluntary organization and the only national health-related organization serving people with Tourette syndrome. It was founded in 1972 by a group of parents of children with Tourette syndrome, along with Arthur K. Shapiro and his wife, Elaine.Pagewise, Inc. Tourette syndrome. Accessed 29 June 2006.

The TSA's mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome. It has 35 U. S. chapters, 300 support groups, and international contacts around the world.Tourette Syndrome Association. About TSA. Accessed 16 July 2006.

The TSA "has been the major drving force in scientific and clinical progress relevant to TS", using its resources to encourage research and scientific initiatives,Walkup, JT, Mink, JW, Hollenback, PJ, (eds). Advances in Neurology, Vol. 99, Tourette Syndrome. Lippincott, Williams & Wilkins, Philadelphia, PA, 2006. p.xv. and working tirelessly to promote information about TS.Cohen DJ, Jankovic J, Goetz CG, (eds). Advances in Neurology, Vol. 85, Tourette Syndrome. Lippincott, Williams & Wilkins, Philadelphia, PA, 2001., pp. xvii - xviii. The TSA has worked for recognition of Tourette syndrome as an organic disorder, lobbying the public, the government, and physicians. They have become adept at winning grants and shaping media treatment of the condition.Pagewise, Inc. Tourette syndrome. Accessed 29 June 2006. Since its inception, research spurred by the TSA has grown in volume and sophistication, including controlled treatment studies and studies of pathophysiology and etiology.Black, KJ. Tourette Syndrome and Other Tic Disorders. eMedicine (March 22, 2006). Accessed 27 June 2006.

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Health charities | Tourette syndrome

 

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